Covid Vaccine Trials: Adverse Reactions, Data Distortion, & Media…

Covid Vaccine Trials: Adverse Reactions, Data Distortion, & Media Censorship

“Omissions are a form of censorship.”

On November 2, 2021, Senator Ron Johnson, Republican of Wisconsin, held a Covid Vaccine Injury panel which featured a plethora of experts and people discussing their injuries, or experiences with the Covid Vaccines. Senator Johnson is a controversial figure, but he seems to be one of the few, possibly the only representative that cares about the Covid Vaccine injured and cares about Covid Vaccine safety. He gives people a platform to talk about their experiences with the Covid Vaccines, and the trials, that they would otherwise struggle to get. That’s very important as Covid Vaccine injuries are occurring and they can be quite severe, even resulting in death. One might think the mainstream media would be interested in covering these stories provided during the panel, but they were more motivated to attempt to discredit them, as you will see later.

Two of the people on the panel were Covid Vaccine injured in their perspective trials. They are, now 13 year old, Maddie de Garay (who was with her mother Stephanie) and Brianne Dressen. They’re not anti-vaxers. Stephanie volunteered her daughter, Maddie, and son for the Pfizer trial and Brianne Dressen, whose husband is a chemist, volunteered for the AstraZenca trial. These are people that are pro-vax, but realize the safety data for the Covid Vaccines specifically, should be brought into question based on what they, and others, have experienced. They are also advocating for acknowledgment and treatment for the injured.

Brandy Zadrozny tries to paint Maddie and her mother in another way. She’s a reporter for NBC News. Brandy wrote a piece, which would be hard to construe in any other way than as a gaslighting piece, on 13 year old Maddie de Garay on November 3, 2021. The date of Brandy’s piece is no coincidence compared to when the panel took place. In the article she tries to tie people who have Covid Vaccine injuries to anti-vaxers. There’s an obvious little problem in suggesting people who voluntarily took the Covid Vaccines, especially in a trial, are anti-vax. People who are anti-vax would not be seen in the same zip code as a Covid Vaccine trial and probably wouldn’t take the voluntary vaccines at all. Before Brandy Zadrozny wrote her article, she spoke with Trevor Fitzgibbon, who handled Maddie’s Covid Vaccine injury panel press release, to ask him questions. Trevor relayed those questions from Brandy to Stephanie de Garay.

Here are the questions that were asked by Brandy and the answers provided by Stephanie de Garay: 1. Have Maddie’s parents officially found out whether she was in the vaccine group or the placebo group? A. Yes, Vaccine., 2. Where are they in the process of Pfizer’s investigation? Last I saw was that they are still investigating. A. As far as we are aware, they are not investigating. They reported the injury as abdominal pain., 3. Pro Vaccine advocates are concerned that Maddie’s AD (she had an ad that was approved to run during a SNL commercial break, but was cut last minute by Comcast, https://odysee.com/@VSRF:d/maddieaddenied:3?r=2M9u5KF2usQwTWCxABmwYSnk3fawY4V1) is the kind of graphic, unverified video that anti-vaccine advocates use to undermine confidence in the Covid Vaccine and all childhood vaccines (‘I don’t get why people lump all vaccines together, especially when the Covid Vaccines have unique characteristics that would make their injury profiles quite different than others.’). Want to give you a chance to respond. A. We should care about the minority of individuals that will be injured by the COVID-19 vaccine. It is unfortunate that “pro vaccine advocates” feel the need to dismiss those injured by the vaccines in order to promote vaccines. The promotion of vaccines is already rampant — what we need is to recognize the harms they can cause so we can develop treatments for these harms and that is what drives the need for ads like the one being run about Maddie. and 4. Do any of her medical records state her multiple conditions are CAUSED by the vaccine? Some of the things I’ve read have noted the timing correlation, but not a diagnosis of causation. (‘The ole, you got paralyzed soon after the Covid Vaccine as a healthy 12 year old girl, causation doesn’t equal correlation trick. That’s a bold stance!’) A. The medical records for each encounter the day after and for weeks after vaccination reflect the vaccine as the cause of injury.

Let’s recap … which may not go well for Brandy. Before she wrote her NBC News article, Brandy was able to see the panel, had Maddie de Garay’s press release for the panel (here is the full release https://docs.google.com/document/d/1eGKZvUI-ZIk4S8Wy8dYhlFRmr4YLePlH/edit) at her disposal, also received the above answers to her questions, and had these medical records below. Yet, she still wrote what you’re about to read.

Below is an excerpt from Brandy’s article “Covid vaccines for children are coming. So is misinformation.”

“Vaccine advocates are pointing to a recent example spreading quickly on social media as a harbinger for the kind of graphic misinformation that they fear most. 

The video, first posted to a fringe anti-vaccine website and then spread through mainstream sites including YouTube and Facebook, is only 30 seconds long, but devastating. In a carousel of vignettes, a young girl with a beaming smile digs in the dirt, dances on her front lawn and celebrates over cake with her family. It then cuts to a closeup shot of the girl’s face as she cries out in pain, her head wrapped in bandages and a tube through her nose. Later, three adults hoist her limp body into a wheelchair, then it quickly cuts to her hospital gown, an intravenous line in her hand and ends, lingering on a video of her legs as she shakes uncontrollably. 

The cause of the girl’s condition is unclear. Her mother said on a panel held Tuesday in Washington, D.C., hosted by Sen. Ron Johnson, R-Wisc., that she was injured by a Covid vaccine administered as part of a Pfizer trial at Cincinnati Children’s Hospital. (Johnson has been widely criticized for spreading misleading claims about the vaccines.) The family’s lawyer, Aaron Siri — who also represents the country’s largest anti-vaccine organization, the Informed Consent Action Network — claims the doctors investigating the case misdiagnosed her myriad injuries as unrelated to the vaccine then downplayed them as abdominal pain. In the meantime, anti-vaccine activists have made the girl a poster child for their cause.

The mother of the girl and the group behind the ad have not provided any evidence that the girl was diagnosed as harmed by a Covid-19 vaccine.”

That seems to be an “interesting” take on Brandy’s part, based on the facts. As you can see she attempted a couple of obvious tactics that maybe a few a little light on the IQ fell for. 1. She called someone’s own story about their Covid Vaccine Injury, a 13 year old girl mind you, misinformation and stated there is no evidence of it (despite the evidence of it). As if Brandy is like Facebook’s Algorithm and has no ability to reason, automatically discrediting or censoring anything negative said about the Covid Vaccines. I thought reason is what separated the humans from the rest. 2. Zadrozny tried to tie Maddie and her mother to anti-vaxers by saying the lawyer representing them is an anti-vaccine, wink wink. NO ONE anti-vax signs both their children up for a vaccine trial. What a ridiculous attempt to tie the two together that was blatantly transparent. Perhaps the lawyer is used to representing the vaccine injured and that’s the reason he was hired … because he knows what to do … because Maddie is Covid Vaccine injured like is stated in her medical records. 3. The worst one. Brandy lied. She said Stephanie de Garay provided no proof Maddie was diagnosed as harmed by a Covid-19 Vaccine. She did provide proof. It was in the press release. Brandy chose to ignore it. Unfortunately for this “reporter” … she’s been downgraded to the quotation marks now …. clinical diagnosis is a diagnosis and Maddie de Garay has that. The key parts of the press release were highlighted and everything. It was clear as day, a 3rd grader’s delight and an NBC News reporter’s worst nightmare apparently. I guess it’s simple enough to just ignore what you want in order to protect the narrative you believe in at all costs. Even at the cost of throwing a 13 year old under the bus while not being honest about Covid Vaccine injuries that are occuring.

You can see this upstanding journalist’s gaslighting piece on a Covid Vaccine Injured paralyzed 13 year old girl with a feeding tube below. You are advised to not eat food or drink anything at the same time as reading this. https://www.nbcnews.com/tech/tech-news/vaccine-misinformation-poised-spike-covid-shots-kids-roll-rcna4360

But I digress. Let’s go back to Maddie and Brianne (and others) who had their data distorted or left out altogether in their Covid Vaccine trials. Maddie de Garay, a 12 year old girl at the time, participated in a Pfizer Covid Vaccine Trial. Unfortunately, she is now paralyzed, using a feeding tube, and has constant pain in her stomach, back, and neck because of her Covid Vaccinations. Her side effects to this day, 9 months later after her 2nd dose of the Pfizer Vaccine, are still listed as functional abdominal pain aka a stomach ache, despite her mother Stephanie’s plea for it to be changed. Part of the problem seems to be that the app used in trial to track side effects. It only allowed for Maddie to record solicited adverse events like fever, injection site pain, anaphylaxis, etc., but many of the more severe side effects were not listed as choices. Additionally, there was no write in option for other side effects and you could only report side effects for 7 days after each shot. It’s almost as if they didn’t want to know. Vaccine injuries can start weeks to a few months after the shot. Why are they only tracking for 7 days? Makes ZERO sense if they truly want accurate safety data. One of the main reasons for a trial in the first place! In order to report an adverse event not listed in the app, one of the two options you have is to call the study doctor.

In the EUA amendment and NEJM article, Maddie’s injury is listed as functional abdominal pain, even though her principal investigator was the lead author of the NEJM article (fully aware of her paralyzation and other injuries). By the data collection cutoff for the trial, Maddie had experienced 35 adverse events. Pfizer, nor the FDA, nor the CDC has ever reached out to Maddie or Stephanie. Seems like the bigger story here is the distortion of trial safety data, and not so much taking the time to falsely represent the cause of a 13 year old girl’s medical condition.

About a year ago, Brianne Dressen gladly signed up to be in the AstraZenca (AZ) Covid Vaccine Clinical Trial. “I never had any issue with any vaccine” she said. AZ agreed to pay any medical expense as the result of any medical injury from the trial. A year later and she’s seen the grand sum of $590. She has had to refinance her home to pay for the more than $300,000 in medical bills. Bree quickly fell ill with major neurological issues that have lasted for many months after the first dose. She lost the use of her legs and was diagnosed with MS. The NIH has told her her reaction is an immune mediated response to the spike protein. Dressen wasn’t allowed to get second dose and was dropped from the trial, her data excluded, and access to trial app deleted. Before the app was deleted, she experienced many of the same things Maddie did above with her app. There was no way to track most serious side effects from the app and nowhere to write in side effects. The final report says the individuals that didn’t get the second dose chose to forgo getting it. Brianne claims that’s incorrect, as she was removed from the trial. Either way, why doesn’t her adverse reaction data matter? Do we not care who was harmed from the first dose of the vaccine and how they were harmed when it comes to the safety of them? This seems like a major flaw in the trials. People receiving these shots would care. They deserve their proper informed consent, which they aren’t receiving. Brianne hasn’t heard from officials in regards to the trial in 10 months and all that critical safety data is now lost.

Janet Woodcock, acting Commissioner of the FDA, and Peter Marks, director of the Center for Biologics Evaluation and Research at the FDA, have been asked, begged, and pleaded with repeatedly to acknowledge these severe reactions. They’ve declined. “They know about the issues with the clinical trials, they know about the deaths, they know about the lack of follow up on VAERS, they know about the injuries to children, they know about Maddie, they know about the mandates put on the injured, they know about the suicides as the results of month’s long suffering, they know about the aggressive censorship, they know about the media censorship, they know about the scientific censorship … THEY KNOW ALL OF IT, and they have for months” says Brianne Dressen. Peter Marks has been seen in a video interview commenting on what’s the worst that could happen to children getting the Covid Vaccines (12-15 year olds). The worst he had to say was there was some Myocarditis in males that was typically not severe. You would think, at a minimum, the worst that could happen is paralyzation, based on what happened to Maddie de Garay, whom Peter Marks knows about. Guess that slipped his mind. I’m sure it was an honest mistake. You can watch what he said verbatim below.

Towards the end of Bree’s speech on the panel, she reads a tear jerking letter her friend wrote her before they committed suicide because of their Covid Vaccine injury. It was heartbreaking to hear, but unfortunately, not surprising as I know of others who committed suicide from Covid Vaccine injuries (and Long Haul Covid too).

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https://rumble.com/vokrf7-sen.-johnson-expert-panel-on-federal-vaccine-mandates.html *start at 2:29 for Maddie and then Brianne, but the rest of the panel is really important to watch too. Including Ernesto Ramirez, who lost his 16 year old son five days to an enlarged heart after the Pfizer vaccine.*

The organizations that should protect us, aren’t protecting us. Big pharma seems to only care about their own profit motivations, the government won’t help those screaming out for help, social media platforms will censor those talking about their own Covid Vaccine injuries claiming reality is misinformation, and the media will flip whatever on its head and gaslight a child in order to promote their narrative that Covid Vaccines are quite safe without taking everything into consideration or investigating further. Not to sound too dramatic, but that is pretty scary and arguably even evil. Brianne Dressen had a Facebook group of 5,000 Covid Vaccine injured. Her one mistake was letting it get too big. Facebook found them and destroyed the group. They lost contact with many people in crisis when they were shut down. People contemplating suicide that seeked the support of others who were in their position and believed in them, because so many doctors and people in their lives do not. These groups are sometimes the only lifeline for the Covid Vaccine injured, who as you can see get gaslit at ever turn.

It’s a shame what happened to Maddie, Stephanie, and Brianne, and others, because of the Covid Vaccines. They’re very brave to speak out, while ill, when everyone in a position of power seems to be against them. People need to know their stories. People need to know how people and organizations are actively trying to suppress these Covid Vaccine injuries. People need to push back against this very un-American censorship, the lies, and distortions. We need to try to get a better and fairer assessment of the safety profile of the Covid Vaccines and get acknowledgement for the injured and treatment for their Covid Vaccine injuries.

P.S. – You can find Brandy Zadrozny’s public contact information below. In case, you want to tell her how you feel about her wonderful self help article showing you how to gaslight a paralyzed young girl while making it seem like you’re on the side of reason and morality at the same time. — Banner: @alisonzai / Email: Brandy.Zadrozny@nbcuni.com / Instagram: BrandyZadrozny / Signal: 5512470630 / Twitter: BrandyZadrozny

Thousands of Recent Unexpected Deaths in England & Wales:…

Thousands of Recent Unexpected Deaths in England & Wales: Why?

A few days ago I noticed an article in Yahoo News, via The Telegraph, entitled “Thousands more people than usual are dying … but it’s not from Covid.” ¹ The publication goes on to state a few things that I will comment about later. Here are some bullet points:

1. There have been thousands of excess deaths recently in England and Wales (E&W), which is particularly unusual for the summer time. Since July 2, 2021 (date of article September 24, 2021) there have been 9,619 excess deaths in E&W. 4,635 of those deaths were not caused by Covid-19.
2. In this time period there have been 2,103 extra deaths from ischemic heart disease, 1,552 from heart failure, and 760 from cerebrovascular diseases such as stroke and aneurysm.
3. A doctor interviewed suggested this may be occuring because of a backlog due to the delays Covid caused for other patients. Elective operations fell significantly between March 2020 and February 2021 as the NHS prioritised Covid-19 care.

Let’s first analyze the data before we get to my suspected reason as to why. Enjoy the math, I know I do! There are 84 days between July 2nd and September 24th (if this is the time period they are saying in the article, it’s not completely clear, but this is me being conservative). 84 days x 4.345 = 365 days approximately (1 year). Thus 4,635 excess deaths x 4.345 = 20,162 excess deaths in a year (if paced equally).

In the United Kingdom (which also includes Northern Ireland and Scotland) the Covid Vaccinated population % with the 1st dose by July 1, 2021 was 82.8% and 2nd dose was 61.2%. By September 24, 2021 the vaccinated population % with the 1st dose was 89.6% and 2nd dose was 82.2%. By adding 89.6 + 82.2 and then subtracting 82.8 + 61.2 from that, and then by dividing the result into 82.8 + 61.2 we can figure out how many more Covid Vaccinations took place between January and July 1 2021 as opposed to July 2 and September 24 2021.² The results are in … from January to July 1 2021, 5.18x (actually higher because there was a month and change of data missing from the website I was looking at) more Covid Vaccinations were provided as opposed to the 84 days after in England and Wales. … By this point you probably know where I’m heading with this, but there is more analyzation to do.

Since there were 5.18x more Covid Vaccines provided prior to July 2nd through September 24, 2021 in E&W, this has to be taken in account. If these excess deaths were caused by the Covid Vaccines than 28,644 people died in excess in England and Wales between January 11 and September 24th 2021 with 3+ months left to round out a year, and with boosters possibly on the way. The population of England and Wales combined is 59,116,000. The population of the United States is 328,200,000. USA’s population is 5.55 times larger than England and Wales combined. Multiplying the revised number of 28,644 excess deaths by 5.55, based on how much larger the US population is than England and Wales’, you get 158,975 excess deaths. The UK is only about 3-4% more vaccinated than the US. Adjusting for that, conservatively, we get to 152,616 excess deaths potentially in the US if caused by the Covid Vaccines in 8.5-9 months time.

There are certainly variables at play that don’t make this mathematical process perfect, such as: the US not having AstraZeneca as an approved vaccine, how are excess deaths measured and if there are multiple reasons for them (if there are less flu deaths, car accident deaths, and more people taking their health seriously, etc. does this mean that there really are even more accidental deaths or the reverse could be true from suicides, delayed surgeries, etc.), excess deaths exist normally, but they usually occur in the winter, etc.

So what changed from 2020 to 2021? There was a backlog in operations and procedures in both 2020 and 2021. Covid was running rampant both years as well. The vaccine is by far the biggest change. Hundreds of millions of vaccine doses were dolled out in England, Wales, and The United States. The vaccine rollouts started December 8th in the UK and December 14th 2020 in the US.

Is it possible these excess deaths, which seem largely heart and vascular related in England and Wales, are caused by the Covid Vaccinations? It should be considered seriously as opposed to the media, social media, and tech companies trying their hardest to prevent “misinformation.” “Misinformation” such as people talking about their own vaccine injuries and their own experiences. Since when can’t people discuss and get censored for such things in a “free” United States of America? It’s despicable what these platforms are doing to people seeking help and trying to inform others, but I digress.

Do I know that Covid Vaccines caused these deaths? No. Should health organizations and the media take these excess deaths seriously and investigate? Yes. That shouldn’t be so much to ask. They should naturally want to dig deeper into these mystery deaths. … In time we should know the excess deaths in 2021 for the US (a few months probably). That will be telling. I won’t be surprised if there are a significant number of excess deaths this year in the United States as well. The data on Covid Vaccine adverse events and injuries is weak, to put it mildly. You’d be quite intellectually dishonest and naive to think otherwise. These statistics put my antenas right up. If the powers that be really cared about the well being of the people, they would look into this instead of worrying so much about censoring and suppressing skepticism.

I hope we get these answers soon as to why these deaths are occuring. Maybe it won’t correlate to the vaccines, but until we get better data which has been properly analysed so we have clearer answers, remember “there are lies, damned lies, and statistics.”

1. https://news.yahoo.com/analysis-thousands-more-usual-dying-170117640.html?guccounter=1&guce_referrer=aHR0cHM6Ly9sLmZhY2Vib29rLmNvbS8&guce_referrer_sig=AQAAAAFe8XvdFFxQ2wuFt5mL8L38nuFwCWVFr9YsiW36xrzEEgfWME_pQoJtruJQKt9oVOTUYNPncsRvPDY6FtkkuunlV8Ags_DXWqywIzbx635TQbQSpZEJin25k6jwNrdnXyCssOOmlEJCnPGe6L6b53x2dm3fdZUIlA7I1rnit_LH
2. https://coronavirus.data.gov.uk/details/vaccinations

TLC – Treat Long Covid – Conference Day One…

TLC – Treat Long Covid – Conference Day One Notes (6.19.21)

All notes below are thoughts expressed during a Long Haul Conference on 6.19.21. Please consult a physician before acting upon any of the information presented below. Notes may be incomplete. Please double check notes with video, when that is made available.

Dr. Bruce Patterson — Covid Long Haulers & IncellDX  

• Immuno Watch App coming out in a month to track symptoms, etc. 
• Immune System Dysfunction can occur when virus not cleared
• IncellKine Kit can measure cytokines and chemokines
• CD14-CD16% shows increase in monocytes
• CD19 shows B cell increase
• CD40, VEGF show vascular inflammation
• IFN-Y & IL-2 important Long Hauler markers
• There is now a lab in Chicago (and I believe Colorado) doing the IncellKine testing
• 6,000 tested so far and Dr. Patterson and his cohort are treating 50-100 Long Haulers a week
• Register on www.covidlonghaulers.com
• There is now a code for insurance reimbursement for Telemedicine
• Pushing for more funding for those who cannot afford
• Long Haul Covid centers around vascular inflammation
• CD14+-CD16+ elevated in Long Haul Covid means antigen presenting and monocytes scavenging
• CD14Low-CD16+ means antigen present, associated in some way with vascular and endothelial systems
• CCR5^ (CX3 and CR1 ???) less Ace2, CD14+-CD16+
• Cells might not be infected anymore, monocytes are probably scavenging endothelial cells that contain SARS2 protein
• Find these monocytes in Long Haulers up to 15 months past initial infection
• Covid protein stimulating immune response
• Protein can cross the BBB (blood brain barrier) and it binds to endothelial cells and causes vascular inflammation
• CD14Low-CD16+ S1 protein activating immune system, vascular inflammation — Maraviroc for CCR5^, Statins interrupt fractalkine receptor
• S1 protein confirmed
• Inhibit non-classical monocytes by binding
• Angiogenesis = VEGF^ 
• Vasodilation may = head fullness, headaches/migraines
• Monocytes mobilized by exercise
• Blood vessels inflamed, systemic issue, nothing more systemic than blood vessels
• Reservoirs of Covid form during acute illness which probably accounts for many Long Haulers, immune system disrupted
• Virus can be active despite negative nasal swab (can be somewhere else in the body)
• Had one patient RNA positive for the virus at 15 months (virus may not be replicating though)
• Aggressive treatment with initial infection would help
• Believes Borrelia (Lyme Disease) protein membranes scavenged by monocytes possibly for years, believes this may cause Chronic Lyme, no Lyme to be found — (NOTE: Having had Chronic Lyme and managed a clinic that was very Lyme centric, I would disagree that there is no Lyme active, as I reacted to antimicrobial treatments and they eventually gave me my life back after 10 years (when I found the right one). I even feel that Covid is active still as the same areas keep being affected for me. If the protein was just circulating wouldn’t I be affected all over instead of very specific spots? Maybe the virus and Lyme are just really hard to find in testing. I don’t know, food for thought. I think Dr. Patterson is great. He’s doing some amazing things, but if he experienced this stuff like I have, I wonder if he would take a different viewpoint, despite the testing. Both Lyme and Covid are quite complex, so anyone trying to get to the bottom of either of these things deserves a lot of credit for that massive undertaking, and stressful undertaking.)
• Testing will be available soon in Europe for cytokines & chemokines — Pilot is being done in Madrid

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Dr. Syed Mobeen — Drbeen Medical Lectures on YouTube & drbeen.com

• Dr. Been is a software engineer in addition to being a doctor
• Works with FLCCC
• Early aggressive treatment would help
• Likes statins, steroids, Luvox (Fluvoxamine), and Ivermectin
• Possibilities: Viral Hit and Run causing immune dysregulation — RNA Less Viral Debris (Proteins), monocyte repair calls for eating up of broken tissue, antigens, etc. — Virion Debris persistence in other tissue, after RNA cleared out — MCAS starting up or unmasked — Macrophage Activation Syndrome (MAS), non-classical monocytes
• Multi-system issue — Ivermectin can’t cross BBB
• Sometimes temporary improvement with Ivermectin, helps with inflammation
• Ivermectin 0.2mg/kg to 0.4mg/kg of body weight
• 3 out of 100s of Dr. Been’s patients became Long Haulers
• Correct vitamin levels important
• Luvox 50mg 2x a day for 1-2 weeks (NOTE: a lot of Long Haulers start slow and build up. I had some side effects, so I’m glad I did, but they went away after a few weeks) — use if you have neuro symptoms — can cross BBB — not being used for psychiatric reasons by Dr. Been — Sigma 1 mechanism, anti-inflammatory for neuro
• Ivermectin taken 5 days then weekly for 2 months
• Ivermectin disrupts or binds with spike protein, changes macrophage and monocyte behavior (NOTE: For everyone’s understanding below is the definition of a monocyte and macrophage)

Monocytes are the largest type of white blood cells and play an important role in the adaptive immunity process. Monocytes typically circulate through the blood for 1–3 days before migrating into tissues, where they become macrophages or dendritic cells.

Macrophages are monocytes that have migrated from the bloodstream into any tissue in the body. Here they aid in phagocytosis to eliminate harmful materials such as foreign substances, cellular debris, and cancer cells.

• No Ivermectin for those under 2 years old, pregnant, or compromised BBB
• If dizzy then reduce dose and move to evenings
• Lymphatic Massage (around neck/head) and Spinal Pumping can reduce neuro symptoms
• Pulse steroids for pulmonary system
• If Fluvoxamine (Luvox) makes symptoms worse think MCAS
• Steroids 0.5mg/kg for days, 0.25mg/kg for 5 days, 0.12mg/kg for 5 days (taken in am) — may have to repeat after a month
• If bounce back to baseline symptoms after steroids go to Ivermectin or Fluvoxamine
• For MAS (Macrophage Acr — Take Vit C 500mg 2x a day, Omega 3 4gm/day, Atorvastatin 40mg/day, Melatonin 2-10mg at night (increase over time), D3 2,000-4,000 IUs Daily
• MCAS (Mast Cell Activation Syndrome) poked by Covid or unmasked by Covid
• For MCAS, Type 1 Antihistamines: …. Type 2 Antihistamines: …. Mast Cell Stabilizers: …. LDN & ….
• FLCCC.net
• Majority of patients feel worse with vaccine (as per Dr. Tina Peers)
• Conjecture as to why vaccine helps some and has a negative impact on others — 10-20% seem helped possibly because immune system not active enough to clear out viral debris and immune system get boosted to help clear that — Negative impact may be because vaccine produces spike protein, causes non-classical macrophages, spikes stay causing Long Haulers because of the vaccine

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Dr. Lawrence Afrin — Mast Cell Activation Syndrome Expert

• MCAD (Mast Cell Activation Disease)
• Allergic diseases = allergy + inflammation
• Mastocytosis = MC neoplasia (abnormal growth of tissue) + allergy + inflammation
• MCAS (Mast Cell Activation Syndrome) = inflammation + allergy + aberrant growth (Dystrophism)
• Case Study (non-Covid and Long Hauler): woman in her 30s notices migratory rash — over time has fatigue, itching, vertigo, falls, evals negative — eventually mildly elevated hemoglobin, polycythemia vera (PV) diagnosed incorrectly — steadily worsened with migratory GI symptoms, labile BP/pulse (POTS), poor healing, episodic shortness of breath, frequent upper respiratory “infections” with no infectant ever found, rashes to all antibiotics
• Serum tryptase, urine N-methylhistamine normal, marrow and rash biopsies show no mastocytosis
• sl. ^ urinary prostaglandin D2
• EGD/colonoscopy normal, but biopsies taken anyways — all textbook normal on H&E, but on IHC …
• CD117 staining showed MCAS
• Diagnosis was “atypical mastocytosis” —- Low-dose Imatinib begun, 100mg/d for 1 week then 200mg/d — First week tolerated fine, but no response and then, on waking the morning after the fourth dose of 200mg all symptoms were acutely gone, improvement sustained more than 12 years now, all labs normalized, and resumed exercise and full time work
• Case Study (non-Covid and Long Hauler): woman in her 50s with worsening fatigue and severe anemia — diagnose with idiopathic pure red cell aplasia (PRCA confirmed) — needed 3 units of blood every 2-3 weeks to maintain merely half-normal hemoglobin (Hgb) level
• 5 years later: ROS pan -+, uPGD2 ^^^, diagnosed with MCAS
• Antihistamines: Good Hgb ^ in 4 weeks, no transfusions
• Imatinib 200mg/d added: Hgb normalized in 6 weeks
• “PRCA” relapsed 1 year later — tried cromolyn and in remission again in 4 weeks
• Case Study “Burning Mouth Syndrome” (non-Covid and Long Hauler): woman in her 50s with new constant burning pain throughout GI tract, pain score 10/10 in mouth
• Extensive evaluations only found mild chronic stomach inflammation and finally, a 100 fold elevated chromogranin A (CgA) (wasn’t on PPIs [Proton Pump Inhibitors])
• Top 5 US NE Cancer experts unanimously thought because ^^CgA that must be due to NE Cancer, so keep looking
• 5 years later — revisited old gastric biopsy with CD117 staining, showing ^^MCs (but not in pattern suggestive of mastocytosis) — diagnosed with MCAS
• Antihistamines/NSAIDs caused pain to decrease to 1/10 overnight
• MCAS found in every subsequent “idiopathic” BMS patient Dr. Afrin has examined — different abnormal MC mediator patterns in blood/urine in different patients — ^MCs in GI tract biopsies when checked — All responding to various MC-targeted therapies

TO BE CONTINUED

Luvox, Luv It – My Brain on Fluvoxamine

Luvox, Luv It – My Brain on Fluvoxamine

It’s been a brief period of time I’ve been on Luvox, as I call it so I don’t butcher the spelling and pronunciation of Fluvoxamine, but the benefits have been profound. A little more than a week is how long I’ve been taking this SSRI drug, but my brain fog, neck, and head pain/discomfort have improved dramatically after months of stagnation. Mood and functionality are also better. The proof is in the pudding as I’m writing this blog post right now after weeks of not being able to use my brain as much as I needed and wanted. Writing a blog post without being on Luvox would be a daunting task!

My dosing went as such: started at 12.5mg and worked up to 100mg in a week, paused it briefly (this is a drug you generally want to taper off is my understanding, just fyi), and am now taking 50mg a day split into two doses, morning and night. The number of things I’ve done that haven’t helped much or at all I can’t count on 20 hands, but Luvox was a game changer quickly (for me and many other Long Haulers, but not everyone). 100mg seems to be the magic dose, but I am going slow with it because of potential side effects such as: lose of appetite, increased anxiety, heart fluttering/uncomfortableness, fatigue, etc. There are also a number of contraindications with Luvox. If you have brain fog, neck pain/stiffness, and brain nerve pain it may be worth it to ask your doctor about the use of this drug. At this juncture, it’s being fairly widely implemented for Long Haulers (and acute patients as well). It’s in favor with some of the top Long Haul Docs as well.

I’d say “I’m Luvin’ It” about Luvox, but I don’t want to get sued by Mickey Ds, so I’ll simply say, so far … I luv it.

Update to follow!

Covid Long Hauler Discussion with Dr. Bruce Patterson, Dr.…

Covid Long Hauler Discussion with Dr. Bruce Patterson, Dr. Yo, & Dr. Bream Notes (4.11.21)

All notes below are thoughts expressed during a discussion with Dr. Bruce Patterson. Dr. Yo, and Dr. Bream on 4.11.21. Please consult a physician before acting upon any of the information presented below. Notes may be incomplete.

• IL-6 and IL-8 cause muscle and joint pain 
• Some people 3 months out may have active covid with rna – decreased CD8 
• CD4 low with hiv
• CD8 low with covid — single digits, but should be about 30 
• 25% of Long Haulers still have low CD8%
• 4,500 patients registered at http://www.covidlonghaulers.com and are being tested
• Dr. P has treated 100+ Long Haulers
• Incredible immune response seen in LHers
• Elevated Rantees (71% of time) – can happen in any organ
• Blocking CCR5 important in active covid and for Long Haulers 
• CCR5 also works for another reason (published — ???)
• Rantees is elevated in active COVID and LHers 
• IL-2, IFN-y (anti-viral immune responses) – low in novel Covid (because it’s new to body) 
• LHers – high IL-2 (fatigue, burning, brain fog, almost anything) and IFN-y 
• VEGF (fatigue) – most important brain fog marker
• 79% of LHers have elevated VEGF – possibly due to vasculitis, micro clots, damage to endothelium  
• Ivermectin and steroids for IL-2 and VEGF 
• 9One subject was 95% better with Maraviroc (went from a LHI of 11.4 to 1.3)
• 50% better with Ivermectin and same with Steroids 
• 50/50 for Maraviroc as well 
• Fluvox may help with brain fog and help with blood clots 
• Covid protein found in LHers in a cell type that migrated from the brain to different parts of the body —- easily passes BBB
• This cell type is mobilized by exercise (possibly why people feel worse after exercise, Dr. P has seen this happen time and time again with Long Haulers)  
• This cell type expresses CCR5
• Could inhibit these cells with LL or Maraviroc 
• $360 for blood panel Dr. P offers at his website above – could be reimbursed by insurance  
• 14 markers tested, plus severity score, LHI, and put in algorithm 
• Rantees attracts macrophages and T cells (like a bee to honey)
• CCR5 regulated by cytokines 
• CCR5 expression on immune cells going crazy because of cytokines 
• Women have better immune systems than men, higher auto-immune rates
• Dr Yo loves Dr. P 
• All advocacy groups led by women (Not mine Dr. P)

Covid Long Hauler Q&A with Dr. Bruce Patterson &…

Covid Long Hauler Q&A with Dr. Bruce Patterson & Dr. Yo Notes (2.18.21)

All notes below are thoughts expressed during the above YouTube Q&A with Dr. Bruce Patterson on 2.18.21. Please consult a physician before acting upon any of the information presented below. Notes may be incomplete.

• Dr. Patterson’s website www.covidlonghaulers.com
• Long Hauler Index (LHI) was computer created – 0.75 Normal
• Acute Covid patients have lower scores than Long Haulers
• 50-66% of Long Haulers have elevated Rantes
• IL-2 high, INY-y high, and CCL4 low in Long Haulers
• CCL4’s key immune function is macrophage and nk cell migration
• Not many differences in demographics regarding Long Hauler Indexes
• LHI higher the worse the symptoms
• On Dr. Patterson’s Twitter he talks about Cytokines relating to specific symptoms
• 79% of Long Haulers have elevated VEGF
• VEGF relates directly with the symptoms of burning, brain fog, and neuropathy
• Maraviroc helps decrease VEGF and brain fog
• Low Dose Steroids for at least 2 weeks in combination with Ivermectin or Maraviroc – 85-90% respond in combo
• TNF-a, IL-6, VEGF, and Rantes all can be modulated with Maraviroc
• CD8 low in severe critical Covid
• CD4 & CD8 seen in viral or cancer response
• 25% of Long Haulers have low CD8 8-10 months after initial infection
• CCR5 is the quarterback of the immune system
• Delta 32 deletion in 50% of population, 20% mild to moderate, 25% of Long Haulers, and 4% of severe Covid
• Lower doses of Maraviroc for these people with Delta 32 deletion
• Children: Kawasaki Disease, Rantes high
• Drugs should be safe with children, high dose of steroids could be bad for children
• Gut has 98% of immune cells
• Dormant/reactivity – indicative of reactivation because dominance of type 1 cytokines
• Reactivated Epstein Barr Virus (EBV) often comes along with elevated B Cells
• EBV goes with swollen spleen, lymphs, and exhaustion
• Some Long Haulers have herpes virus(es) reactivate
• Maraviroc is neurotropic, it crosses the blood brain barrier (BBB) thus that and Leronliamb both get to the brain
• It’s possible there are Covid viral reservoirs
• Had trouble finding HIV in testing at first as well
• Hepatitis C, HIV – Look at CD14, CD18 and it likes to hide in macrophages
• Eventually with Covid we should be able to tolerate antigens, remove remaining particles and virus, and Dr. Patterson thinks the virus might not be replicating in LHers
• HIV has tremendous mutation rate, Covid doesn’t
• Covid may not mutate as much as HIV because there aren’t anti virals for it and/or it doesn’t need to because it’s a novel virus to peoples’ immune systems
• Covid tests are less than perfect (may have to repeat to get a proper result, and even then)
• Could be that 30%+ do not build antibodies to Covid
• Long Haulers have been complaining Quest and Labcrop cytokine panels are not equivalent to IncellDx panel
• There are reasons for this, but what you want to do is use the same lab as previously and ideally IncellDx’s as it has higher sensitivity and the sample isn’t traveling from lab to lab
• Covid Long Haul symptoms indicative of immunological abnormalities
• Dr. Patterson will have 2-3 partner labs up and running soon to analyze cytokines and chemokines (1 lab also operates in Europe)
• Dr. Gaylis wants to do testing as well (leader of Leronlimab trial)
• Dr. Patterson prefers precise medicine approach
• VEGF high, Vasculitis
• Believes hyper inflammation is causing false positive auto immunity and is causing auto reactive antibodies
• With real auto immunity he would be concerned with using CCR5 antagonists and steroids
• Does not believe steroid dose packs are very helpful, prefers 5-10mg of steroids consistently for 2+ weeks
• The blood panel might help other people with post infectious issues in the future
• Doesn’t particularly like immune modulators for auto immunity
• Dysautonomia markers seem to be positive maybe 30% of the time for people with Covid, hyper inflammation may be causing a false positive
• App is on the way (in 2-3 months) to track your vitals and to get real time information on someone with Long Haul Covid (BP, VHR, etc.)
• Has data to show that disability insurance is needed for those with Long Haul Covid
• Has data to show how people are improving with his treatments (retesting blood)
• There’s no magic pill – likes using combinations – steroids, Ivermectin or Maraviroc and steroids, etc.
• Has a favorable opinion of TA1 (peptide)
• Believes toolbox of therapies will grow in time
• Dr. Parikh can see patients in NJ or NY
• Dr. Yo and Dr. P have interest in Fluvoxamine
• Low Dose Naltrexone (LDN), anti histamines, and Niacin all can somewhat help LHers
• Dosing tricky with Ivermectin horse paste — Dr. Yo urging people to be careful getting Ivermectin and other drugs through unconventional means
• They can help with finding you doctors to prescribe helpful medication (check their website)
• 30 patients have taken Maraviroc and none of them have had liver issues thus far (Maraviroc has a black label warning)
• Didn’t believe stem cells were warranted based on abnormalities
• Has a favorable opinion of IVIG – IVIG can help with auto immunity and respiratory
• Dr. Yo was warning about over testing and spending too much money on that
• Maraviroc is 2 pills a day
• Cytokines can go all over, even places where not needed
• Chest pain often Pericarditis
• TNF-a (depression) and VEGF (burning, brain fog, and neuropathy)
• IL-6, TNF-a, and VEGF should all go down with Maraviroc and Leronlimab
• Without high Rantes would not prescribe Maraviroc or Leronlimab
• CD40 elevated in up to 50% of Long Haulers, micro emboli may exist
• 85-90% of patients see response in some combination of Ivermectin, steroids, and Maraviroc
• Doesn’t expect this to be a lifelong issue that you have to take drugs for
• Sometimes they see people improved with the above combination of drugs and stay there or they come off of them and revert
• Lab retests will tell how long the drug course duration will be
• Fairly convinced Covid can be persistent
• Publications can be found on website under resources
• Long Haulers who get 2nd vaccine shot seem to generally feel bad after it
• Believes 25% of LHers with Delta 32 deletion being reinfected wouldn’t have Covid as severely
• Leans towards Long Haulers not getting vaccine (nervous about adding fuel to the fire, being cautious)
• If you do get the vaccine, be prepared for potentially having a major reaction

Introduction

Introduction

My name is Devin. I’m a Covid Long Hauler, despite my best efforts. Since March 14, 2020 I’ve been sick riding the “Corona Coaster”, as one of my fellow Long Hauler friends calls it. The term doesn’t quite do it justice. Two years prior to contracting Covid, I had suffered from Chronic Lyme Disease for about eleven years. Those who suffer from Chronic Lyme also call that experience a roller coaster, but I’d take eleven years of Lyme Disease over one year of Long Haul Covid without batting an eye. There’s no doubt this has been the most challenging year of my life … and I’m still unwell. I’ve lost my job, been mostly housebound (except really for medical appointments), spent an obscene amount of money trying to get better, and have been quite sick the vast majority of those 365 days, with little quality of life. If my violin strings were all in working order, I’d get my fiddle out and play it for myself.

Pre-Covid life saw me as the manager of a wellness center with an integrative medical practice operating inside of its space that had a focus on the chronically ill, for four years. The opportunity for that position came about because of my Lyme Disease struggles. My Long Haul Covid issues prompted me to think, how can I turn this into a positive, and continue doing what I came to love, helping people in need of help? Thus, I formed Covid Castaways and created this website in order to do just that.

My intent is to support those struggling to find help, whether it’s aiding in finding them practitioners, or disseminating important information, or raising money for those who need it. Covid Castaways wants to do all it can. There will be more to come down the road, but for now, even if one person benefits from this site, I know my efforts matter. I hope to keep progressing in my wellness and get to a more stable point, so I can put all the energy that I’m used to having into this great cause.

To all those fighting Covid or Long Haul Covid, keep your optimism. You can recover as I’ve seen many improve. It may feel hopeless at times and you may be frustrated at the lack of support you’re receiving, but there is a light at the end of the tunnel … and I’m using that analogy in the good way. We’re in it to win it, for the Long Haul. What other choice do we have?